To fund research to find a cure for FOP while supporting, connecting and advocating for individuals with FOP and their families, and raising awareness worldwide. 

Our Vision

A cure for FOP, accessible worldwide.

IFOPA's Core Values

Respect – We treat everyone with consideration, and value the unique contributions that each person brings to the IFOPA.

Integrity – We act with honesty and transparency, and use our values and mission to guide all of our interactions and our work.

Compassion – We listen to people, especially individuals with FOP and caregivers, so that we can meet them where they are at and provide the support and care they need.

Collaboration – We listen to, support, encourage, and challenge each other in order to best fulfill our roles within the organization, and we look for opportunities to partner with others in pursuit of our mission.

Excellence – We pursue the highest standards of effectiveness and professionalism in all aspects of our work.

Stewardship – We honor the generosity of our supporters by making thoughtful financial decisions that are in keeping with donor intent and that ensure IFOPA’s long-term sustainability.

Passion – We work with a sense of urgency to assist individuals with FOP and their families and help discover treatments and a cure as soon as possible.